2018-12-132018-12-132011RIBEIRO, Maysa Ferreira Martins; BARBOSA, Maria Alves; PORTO, Celmo Celeno. Paralisia cerebral e síndrome de Down: nível de conhecimento e informação dos pais. Ciência & Saúde Coletiva, Rio de Janeiro, v. 16, n. 4, p. 2099-2106, 2011.1413-8123e- 1678-4561http://repositorio.bc.ufg.br/handle/ri/16580The study sought to identify and ana- lyze research related to knowledge and informa- tion received by parents of children with cerebral palsy or Down syndrome about these disabilities. It involves a bibliographical revision limited to the period from 1996 through 2008. Computer- ized data bases were used to collect information, using the following terms as key words: cerebral palsy, Down syndrome, knowledge and family. Fif- ty-seven studies were located from which 16 were selected; of these, seven were related to cerebral palsy, four to Down syndrome and five were relat- ed to sundry deficiencies. The parents receive little information from the healthcare staff and clearly have many doubts about cerebral palsy and Down syndrome. This makes it very difficult for the par- ents to assist in the treatment of their children, as well as interfering in educational practices and decision-making. There is a need for educational actions to change this reality. Only one research project sought to implement educational strate- gies which focused on broadening knowledge among family members about aspects related to Down syndrome. It was concluded that there is an ur- gent need to conduct research and develop actions that contribute to parents being better informed and more secure about their children’s health care.porAcesso AbertoParalisia cerebralConhecimentoFamíliaSíndrome de DownCerebral palsyKnowledgeDown syndromeFamilyArtigo10.1590/S1413-81232011000400009