Paralisia cerebral e síndrome de Down: nível de conhecimento e informação dos pais
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Data
2011
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Resumo
The study sought to identify and ana-
lyze research related to knowledge and informa-
tion received by parents of children with cerebral
palsy or Down syndrome about these disabilities.
It involves a bibliographical revision limited to
the period from 1996 through 2008. Computer-
ized data bases were used to collect information,
using the following terms as key words: cerebral
palsy, Down syndrome, knowledge and family. Fif-
ty-seven studies were located from which 16 were
selected; of these, seven were related to cerebral
palsy, four to Down syndrome and five were relat-
ed to sundry deficiencies. The parents receive little
information from the healthcare staff and clearly
have many doubts about cerebral palsy and Down
syndrome. This makes it very difficult for the par-
ents to assist in the treatment of their children, as
well as interfering in educational practices and
decision-making. There is a need for educational
actions to change this reality. Only one research
project sought to implement educational strate-
gies which focused on broadening knowledge among
family members about aspects related to Down
syndrome. It was concluded that there is an ur-
gent need to conduct research and develop actions
that contribute to parents being better informed
and more secure about their children’s health care.
Descrição
Palavras-chave
Paralisia cerebral, Conhecimento, Família, Síndrome de Down, Cerebral palsy, Knowledge, Down syndrome, Family
Citação
RIBEIRO, Maysa Ferreira Martins; BARBOSA, Maria Alves; PORTO, Celmo Celeno. Paralisia cerebral e síndrome de Down: nível de conhecimento e informação dos pais. Ciência & Saúde Coletiva, Rio de Janeiro, v. 16, n. 4, p. 2099-2106, 2011.