Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde
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2014-08-29
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Universidade Federal de Goiás
Resumo
Sickle cell anemia is an inherited disease considered a public health problem
in Brazil. In Brazil, it is estimated that there are more than 2 million people affected
by some form of this anemia, with 3.500 new cases occurring every year. This
dissertation aims to understand the meanings present in the relations established
between children and adolescents with sickle cell anemia and professionals within
the health services. The methodological choice of this study was the Social Strategic
Qualitative Research and it took place at a Teaching Hospital. Data were collected
through semi-structured interviews with 3 children, 5 adolescents and 9 health
professionals. Data were analyzed through the content analysis technique. From the
interviews with children and adolescents, the following categories emerged: the
disease, the professionals, and the treatment in other services. From the interviews
with health professionals, the following categories emerged: child, adolescent,
mother-family, professionals from other services, the disease, and what to do. The
research conducted indicated that it is necessary to engage children and adolescents
in decisions related to their health-disease process. It also indicated that, in order to
achieve it, the health professionals training have to include elements that enable
professionals to consider children and adolescents as protagonists in their healthdisease
process. In addition, it demonstrated the occurrence of institutional violence
in the health treatment that patients with sickle cell anemia receive, as they have
their autonomy, their subjectivity and their speech prevented and annulled.
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SOUSA, E. Crianças e adolescentes portadores de anomia falciforme: os significados das relações estabelecidas com os profissionais no âmbito dos serviços de saúde. 2014. 131 f. Tese (Doutorado em Ciências da Saúde) - Universidade Federal de Goiás, Goiânia, 2014.