Modelo arquitetural para monitoramento remoto de pacientes em cuidados paliativos domiciliares

Abstract

he management of palliative care for home-based patients faces challenges in maintaining continuous monitoring of their symptoms after hospital discharge. Although palliative care aims to provide better quality of life for patients with life-threatening illnesses, the lack of remote monitoring tools hinders this process and results in delays in interventions for patients outside the hospital environment. The use of mobile monitoring technologies, such as mHealth applications, combined with data security measures based on blockchain, can support symptom monitoring for patients receiving palliative care at home. This approach enables real-time remote monitoring and contributes to the security and privacy of sensitive information collected during the period outside the hospital setting. The objective of this work is to propose a system model for monitoring home-based palliative care patients. The work uses mobile devices in an Android environment to collect information through questionnaires registered by healthcare professionals, combined with the use of blockchain to ensure data integrity and security. To achieve this objective, the research conducts a systematic literature review on technologies and methodologies employed in the mHealth field for home-based palliative care patients and develops a proposal based on the identified gaps. The research presents a conceptual model, the architecture, and the tools used for development, as well as the evaluation carried out by palliative care healthcare professionals at HC-UFG, who are responsible for monitoring the patients. The questionnaires administered to professionals indicated high acceptance of the system, with positive perceived usefulness and intention to use, satisfactory ease of use, and practical suggestions for the next steps. Deployment and testing with end users are planned as future stages, aiming to evolve the proposed model and expand support for home-based palliative care patients.