Qualidade de vida das mães de crianças com paralisia cerebral em reabilitação
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Data
2009-06-17
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Universidade Federal de Goiás
Resumo
This thesis follows the scientific article model. The first article, Quality of life of primary
caregivers of children with Cerebral Palsy: integrative review of the literature was submitted to
the Revista Eletrônica de Enfermagem . In this article, which used the descriptors Quality of
Life , Mothers , Parents , Caregivers and Cerebral Palsy , a integrative review of the literature
was undertaken which included scientific articles published between 1997 and 2008. Of the 28
articles found, 5 formed part of this sample, which despite their considerable methodological
limitations, made it clear that certain aspects of the quality of life of caregivers of children with
Cerebral Palsy are lower than those of caregivers of healthy children. In some of these studies,
the possibility of a correlation between the level of the children s motor disability and the quality
of life of the caregivers was investigated. However, the authors did not agree on this correlation,
which showed the need for further investigation. So to answer this need, a second article,
entitled The quality of life of mothers of children with Cerebral Palsy: the impact of motor
disability , was forwarded to the periodical Disability & Rehabilitation . This was a crosssectional
study, which set out to correlate the quality of life of 146 mothers of children with
Cerebral Palsy with that of 30 mothers of children with normal development, all evaluated by the
Medical Outcome Study 36-item Short-Form Health Survey (SF-36). In addition, the Gross Motor
Function Classification System (GMFCS) was used to characterize the motor disability of the
children with Cerebral Palsy. This study proved that the quality of life of mothers of children with
Cerebral Palsy is lower than that of mothers with children with normal development in terms of
Functioning Capacity and Vitality domains, but the children s motor disability did not influence
it. A third article, entitled Relationship between the quality of life of mothers of children with
Cerebral Palsy and the children s motor functioning, after ten months of rehabilitation was
submitted to the periodical Revista Latino-Americana de Enfermagem . In this article, 100
mothers of children with Cerebral Palsy were studied, in an effort to assess the quality of life of
these mothers after their children s rehabilitation, over a period of ten months. The abovementioned
tools were also used and the Gross Motor Function Measure (GMFM). However, this
was a longitudinal study which sought to correlate the quality of life of the mothers with the
development of their children s gross motor function. The results show that after ten months of
rehabilitation, the gross motor function of the children with Cerebral Palsy had improved
significantly, while the mothers of these children showed an improvement in life quality in the
pain domain; in addition, the improvement in the children s motor function did not influence the
changes which occurred in the mothers quality of life, including the pain domain. On
considering the complexity of quality of life and the clinical condition which Cerebral Palsy
represents, one is led to believe that other factors could have a greater influence than motor
functioning disability, since this factor alone does not interfere with the quality of life of the
mothers.
Descrição
Citação
PRUDENTE, Cejane Oliveira Martins. Quality of life of mothers of children with cerebral palsy rehabilitation. 2009. 201 f. Tese (Doutorado em Ciencias da Saude) - Universidade Federal de Goiás, Goiânia, 2009.